Service Designer

Circa £37,000 – £42,000 per annum

12 months fixed-term contract with a view to extend

Closing date: Sunday 25th August 2019, 23:55pm

Interviews (provisional): week commencing 2nd or 9th September 2019

We are looking for a Cancer Data Access Manager to join our hard-working team at the National Cancer Research Institute and to provide a bridge between the cancer research community and routinely collected or linked data from the National Cancer Registration and Analysis Service (NCRAS) and other relevant data sources across the UK.

Your role will be instrumental in providing data that will develop and inform clinical trials and other high quality research projects which span the cancer journey i.e. pre-diagnosis through to Living with and Beyond Cancer (LWBC) and end of life care. 

In your day to day role, some of the duties you can expect to be involved in are…

• Being involved with regular meetings with key stakeholders including representatives from the relevant funding Partners at Cancer Research UK and Macmillan Cancer Support.
• Having regular contact with the NCRI Groups (including the NCRI Research Groups, NCRI Clinical Trials Units and NCRI Advisory Groups) and NCRAS clinical leads and liaise with these parties on strategic projects and initiatives where there may be an opportunity to utilise or collect research relevant datasets.
• Working closely with the CAS Steering Group, the CAS Analysis Group, the CAS Datasets Group, the Office for Data Release and NCRAS analysts.
• Interacting and building relationships with the wider research community including the Health Research Authority, NHS Digital, HDR-UK and other research active organisations and initiatives with an interest in data usage e.g. FARR, Francis Crick and the Turing Institute.
• Liaising with bodies from across the nations of the UK that routinely collect data to facilitate collaboration, linkage and access.
• Working with the NCRI Research Groups, the NCRI Cancer Clinical Trials Units (CTUs) and other NCRI initiatives and activities to raise awareness of NCRAS data and other relevant data sets from across the UK as part of the development of new clinical trials and other high quality research studies. 
• Working with the research community to identify opportunities for using NCRAS data and other relevant data sets from across the UK and to identify potential barriers in the use of routinely collected data in the development of high quality studies and scope potential ways that these can be overcome. 
• Keeping abreast of policy and organisational changes e.g. GDPR and the implementation of the National Consent Model to support the research community in understanding the impacts of these on their work.
• Working with colleagues in the Office for Data Release to communicate processes for data access, the controls on data use and new data protection regulation to researchers and propose ways to streamline these to minimise burden to the research community.

To be successful in this role, you will need…

• A background in medical research, ideally with experience in epidemiology, clinical trials, basic cell biology and/or health services research (not necessarily cancer).
• Familiarity with information governance frameworks and current information governance issues system wide with a focus on the use of patient data for research will be an advantage.
• Able to communicate with researchers and stakeholders at all levels with a high degree of credibility regarding the issues surrounding data access and governance and the use of routinely collected data in research.
• Strong analytical skills.
• Ability to work independently with a willingness to take the initiative.
• Effective written and verbal communication skills.
• Self-motivated and adaptable.
• Excellent interpersonal and influencing skills.
• Pro-active approach to building effective relationships with internal and external stakeholders at a senior level.

For full role details, please see our role profile here: https://adobe.ly/2OCVha7 

Please note, this role is known internally as Cancer Data Access Manager

Closing Date: Sunday 25th August 2019, 23:55pm

At CRUK we value diversity and we’re committed to creating an inclusive culture where everyone is able to be themselves and to reach their full potential. We actively encourage applications from people of all backgrounds and cultures and believe that a diverse workforce will help us to beat cancer sooner.

Please note, from October 2019, our head office will be relocating from Islington to a new office space in Stratford, close to the Olympic Park.